Welcome to the March 2012 Carnival of Natural Parenting: Parenting with Special Needs
This post was written for inclusion in the monthly Carnival of Natural Parenting hosted by Hobo Mama and Code Name: Mama. This month participants shared how they parent despite and because of challenges thrown their way. Please read to the end to find a list of links to the other carnival participants.
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At one point during my pregnancy, a perinatologist told my midwife that the Gnome was going to lose a kidney. I knew better than to take his word for it; after all, I had just met with some of the best doctors in the city (which this guy was not), and none of them had said anything of the sort. Nevertheless, I was devastated — for days. I e-mailed a friend whose twins were born very early. How did you remain steady? I asked.
Among the many points my friend made was that sometimes, you just have to cry your eyes out.
And so cry my eyes out I did, many times. In fact, I started my maternity leave somewhat earlier than I had planned not so much because I was running around Brooklyn to see various doctors, my midwives, and so on, but because I needed the time to cry.
Not crying doesn’t mean you’re strong. And crying certainly doesn’t mean you’re not strong. You don’t have to be a rock to be steady. After all, my image of steadiness is that of a tree — which does not break because it bends with the wind. So I cried, I dried my tears, and I got back to work: that was how I remained steady through the last weeks of a complicated pregnancy.
Things are much better now that the Gnome is really here. For one thing, everything is simpler. No more perinatologists, second opinions, or decisions to make about the pregnancy. We consult with the one pediatric urologist, and that’s it.
For another thing, the Gnome is really here, in my arms, suckling, growing bigger every day. I imagine there will be more tears — how could there not be more tears? — but right now, thank goodness, I don’t really need them.
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Visit Hobo Mama and Code Name: Mama to find out how you can participate in the next Carnival of Natural Parenting!
Please take time to read the submissions by the other carnival participants:
- Parenting A Child With Neutropenia — Jennifer at Hybrid Rasta Mama discusses the challenge of parenting a young child who cannot produce enough neutrophils to fight off bacterial infections.
- How I Love My High Need Baby — Shannon at GrowingSlower was shocked to find she is parenting a high-needs baby, but she’s surviving thanks to attachment parenting.
- We’re a Lot Like You — kaidera at Our Little Acorn talks about how her family is similar to others, even with all their special needs
- The Emotional Components of Bonding with Preemies — Having a premature baby can bring on many unexpected emotions for parents, but working through those emotions can bring about a wonderful bonding experience. Adrienne at Natural Parents Network shares.
- Raising a babe with IUGR: from birth through the toddler years — Rachel at Lautaret Bohemiet shares the story of how her son’s post-birth IUGR diagnosis affected his first days of life and gave her an unexpected tutorial in advocating for their rights as a family.
- When a grandparent has a disability — Shannon at Pineapples & Artichokes shares how she has approached explaining her mother’s disability to her young child.
- Taking The Time To Really See Our Children — Sam at Love Parenting writes about her experiences working with children with various disabilities and how it has affected her parenting style.
- Natural Parenting In An Unnatural Environment — Julie at What I Would Tell You gives us a glimpse into how she improvised to be a natural parent against all odds.
- Getting Through the NICU — Laura at Authentic Parenting gives a few pointers on how to deal with your newborn’s stay in the NICU.
- Living With Sensory Processing Disorder — Christy at Adventures in Mommyhood talks about the challenges that can come from living with a child who has SPD.
- Our rules for NICU – March Carnival — Hannabert’s Mom shares her family’s rules for family and friends of a NICU baby.
- Letter from Mineral’s Service Dog — Erika at Cinco de Mommy imagines the letter that accompanies her special needs son’s Service Dog.
- Blessings in Unexpected Places — That Mama Gretchen welcomes an inspiring guest post from a dear friend who shares about the blessings that come from a child with Down syndrome.
- Tube Feeding with a Blenderized Diet of Whole Foods — Erica at ChildOrganics shares her experiences with using real food when feeding her daughter who was unable to feed herself and needed a feeding tube.
- Abbey and Evan — Amyables at Toddler In Tow writes about watching her preschooler play with her friend who is autistic and deaf, and wonders how she can explain his special needs better.
- How to Minimise the Chance of a {Genetically Prone} Child Being Diagnosed with ADHD — Christine at African Babies Don’t Cry shares her tips on keeping a child who is genetically prone to ADHD from suffering the effects.
- Tough Decisions: Parenting With Special Needs — Brenna at Almost All The Truth shares what has been keeping her up at night worrying, while spending her days discovering just what her options are for her precocious child.
- Life with my son — For Dr. Sarah at Good Enough Mum, life with an autistic child is just another variation on the parenting experience.
- Dear Special Needs Mama — Sylvia at MaMammalia writes a letter of encouragement to herself and other mamas of special needs children.
- His Voice — Laura at WaldenMommy relives the day her son said his first sentence.
- What is ‘wrong’ with you’ The challenge of raising a spirited child — Tara at MUMmedia discusses the challenges of raising a child who is ‘more’ intense, stubborn, and strong willed than your average child.
- Tips for Parenting a Child With Special Medical Needs — Jorje of Momma Jorje shares her shortlist of tips she’s learned in parenting a newborn with special medical needs in a guest post at Becoming Crunchy.
- Parenting the Perfectionist Child — Mandy at Living Peacefully with Children discusses that as parents of gifted children, we are in the unique position to help them develop the positive aspects of their perfectionism.
- Montessori-Inspired Special Needs Support — Deb Chitwood at Living Montessori Now gives a list of websites and blogs with Montessori-inspired special-needs information and activities.
- Accommodating Others’ Food Allergies — Ever wonder how to handle another family’s food allergies or whether you should just skip the play date altogether? At Code Name: Mama, Dionna’s friend Kellie (whose family has a host of allergies) shares how grateful she is when friends welcome them, as well as a list of easy snacks you can consider.
- Only make promises you can keep — Growing up the child of a parent with a chronic illness left a lasting impact on Laura of A Pug in the Kitchen and what she is willing to promise for the future.
- A Mom and Her Son — Jen at Our Muddy Boots was fortunate to work with a wonderful family for several summers, seeing the mother of this autistic son be his advocate, but not in the ways she thought.
- Guest Post from Maya at Musings of A Marfan Mom — Zoie at TouchstoneZ is honored to share a guest post from Maya, who writes about effective tools she has found as a parent of two very special boys.
- You Don’t Have to Be a Rock — Rachael at The Variegated Life finds steadiness in allowing herself to cry.
- When Special Needs Looks “Normal” — Amy at Anktangle writes about her experience with mothering a son who has Sensory Processing Disorder. She offers some tips (for strangers, friends, and loved ones) on how to best support a family dealing with this particular neurological challenge.
- Special Needs: Limitation or Liberation? — Melissa of White Noise describes the beauty in children with special needs.
- How I Learned It’ll Be Okay — Ashley at Domestic Chaos reflects on what she learned while nannying for a boy with verbal delays.
- Attachment Parenting and Depression — Shannon at The Artful Mama discusses how attachment parenting has helped her get a clearer image of herself as a parent and of her depression.
- On invisible special needs & compassion — Lauren at Hobo Mama points out that even if we can’t see a special need, it doesn’t mean it’s not there.
- Thoughts on Parenting Twins — Kristin at Intrepid Murmurings shares her approach to parenting twins.
- ABCs of Breastfeeding in the NICU — Jona at Breastfeeding Twins offers tips for establishing breastfeeding in the alphabet soup of the NICU.
- Life With Michael – A Mother’s Experience of Life With Aspergers Disorder — At Diary of a First Child, Luschka’s sister-in-law Nicky shares her experience as mother to a child on the Autism Spectrum. It is filled with a mother’s love and devotion to her child as an individual, not a label.
- Raised by a Special Needs Mom — Momma Jorje shares what it was like growing up as the daughter of a mother with a handicap.
- Becoming a Special Needs Mom — Ellen at These Broken Vases shares about becoming the mother of a child with Down syndrome
- She Said It Was “Vital” — Alicia of Lactation Narration (and My Baby Sweets) discusses the conflict she felt when trying to decide whether therapy was necessary for her daughter.






{ 7 comments… read them below or add one }
How freeing it can be to cry! I also reject the idea that holding in our feelings is a sign of strength and steadfastness. Being able to be vulnerable, to feel the things that are happening in the moment: this is strength and authenticity. Thank you for sharing your story!
Growing up with a stoic father, I have to remind myself sometimes that crying is a perfectly acceptable outlet.
I’m so glad that your birth was healthy and free of complications – wishing you a lifetime of the same
This was so moving. It’s very true — I think as parents we’re conditioned to believe that this means always being strong in front of and for our kids. Sometimes it means acknowledging how weak we feel. It makes sense to be frightened and upset by such a tough diagnosis. I love your tree metaphor, and I’m so glad you’re enjoying the Gnome.
I recently had a particularly strong reason to cry hard and often. For the first few days I tried to hide it from my children. Then it became impossible.
What a blessing!
I think my children learned a lot about empathy and compassion over those days. They (2.5 and 4.5) checked in with me often, asking if I was okay or needed anything.
They were not scared of the tears, not at all. And though I still kinda wish I did not have to cry so much in front of them, their love made me smile through the tears.
Thanks so much for sharing your story. I don’t think I would have thought of things in these terms if you hadn’t.
Congratulations too!
I think letting yourself cry because what is happening is not as you imagined it to be happening is incredibly freeing. I hope that I will be able to show emotion and share my feelings with Hannabert as he grows.
What a good post. A gentle reminder to all of us that we are designed to have a good bawl once in a while. It is almost like a regulator of our hormones and chemistry. Can do wonders when the stress gets too great.
Sometimes you really do just have to cry – this is what I learned by having a preemie.
There’s another truth, though. Sometimes you have to forget all the crap and just be with your baby in that moment. That’s just as important. So yes, thank goodness you don’t really need your tears now.